Tuesday, June 14, 2011
West Coast Team CMT Members
They are also both members of their local support group. The support group is newly formed and can be found on the CMTA website under the Arizona CMT All Stars.
Erika found about Team CMT from the article in the national CMTA newsletter. Erika is also a triathlete and has done several sprint triathlons. She joins triathletes Cheryl Monnat, Chris Wodk, Joyce Kelly and Jess Knowles on the team.
Erika was very excited to join the team and connect with others with CMT. She has seen all the biking groups supporting causes and is proud to be on Team CMT. She is going to share the news about our team with our support group. Erika and I both agree one of the best things about Team CMT is connecting with other athletes to support this cause. We all share a love or our sport and a dedication to spreading the word about Charcot Marie Tooth Disorder. Welcome Ericka and Tim. We look forward to seeing pictures and stories from events in Arizonia.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.