Follow by Email

Sunday, April 24, 2016

Soup Sunday-Vegetable Beef Soup with Farro



3 cups beef bone broth
1 (14 ounce) can diced tomatoes
1 tablespoon olive oil
1/2 yellow onion chopped
1 cup diced celery
1 cup chopped carrots
1 cup peas
1 cup farro prepared*
1 tablespoon Italian seasoning
1 teaspoon garlic powder

Put olive oil in the bottom of a dutch oven over medium heat. Add onions and cook until soft.  Add the broth and tomatoes. Bring to simmer and add the celery, carrots and peas.  Simmer for 10 minutes. Add the cooked farro, the Italian seasonings and garlic powder.

*Farro is one of the oldest grains known to man. It originated in the middle east. It is a good source of protein and fiber and has a texture very similar to rice.  Farro absorbs the flavor of whatever it is cooked with.

************************


Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 186 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France, Poland and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing

Thursday, April 21, 2016

HNF Awarded NORD Grant



NORD Announces 20 Rare Disease Patient Groups Selected to Develop Natural History Studies as Part of FDA Cooperative Agreement


Twenty rare disease patient groups have been chosen to develop natural history studies with the assistance of the National Organization for Rare Disorders (NORD) supported in part by a cooperative agreement with the U.S. Food and Drug Administration (FDA).

NORD, the leading, independent nonprofit organization committed to helping people and families affected by rare diseases, today announced the 20 patient groups that will be given the opportunity to develop a natural history study, funded in part by the cooperative agreement, through NORD‟s Natural History Study research platform.

“Our goal is for the 1 in 10 Americans with rare diseases, most of whom are children, to have a treatment and cure, and we developed NORD‟s Natural History Study platform to eliminate challenges standing in the way of that target,” said NORD President and CEO Peter L. Saltonstall. “We thank the FDA for its support of NORD and ongoing commitment to rare diseases.”

The 20 patient groups are
Hereditary Neuropathy Foundation, Organic Acidemia Association, XLH Network, Inc., CCHS Family Network, Pitt Hopkins Research Foundation, The OMSLife Foundation, Platelet Disorder Support Association, Global Foundation for Peroxisomal Disorders, APS Type 1 Foundation, Scleroderma Research Foundation, Galactosemia Foundation, Desmoid Tumor Research Foundation, International Pemphigus & Pemphigoid Foundation, The Morgan Leary Vaughan Fund, Adult Polyglucosan Body Disease (APBD) Research, Bridge the Gap-SYNGAP Education and Research Foundation, United Leukodystrophy Foundation, AMENSupport (American Multiple Endocrine Neoplasia Support), Lipoprotein(a) Foundation, and Worldwide Syringomyelia & Chiari Task Force.

The groups were determined by a competitive application process reviewed by an internal committee. All diseases represented have diagnostic challenges, limited or no research, and cover a broad range of symptoms and medical specialties, including neurology, cardiovascular, musculoskeletal, immunology and endocrinology. Selected organizations are all members of NORD.

Natural history studies are longitudinal studies that aim to fill research gaps to help medical researchers better understand how diseases progress over time. They can yield vital information that is essential to clinical trial design, such as biomarkers, demographics, important clinical symptoms, genetic and environmental variables, and patient perspectives.

Rare diseases have posed unique challenges to researchers and drug developers due to small patient populations, lack of data, clinical endpoints that are often unclear, and enrollment and retention challenges for clinical trials. There are nearly 7,000 rare diseases and disorders, 95 percent of which have no treatment.

Saltonstall added, “NORD‟s Natural History Studies project empowers patients and families to help eliminate some of the „I don‟t know‟ in rare disease research, making way for progress.

Tuesday, April 19, 2016

CMT Connect Workshop



Participate in an HNF CMT-Connect workshop in your area!

HNF encourages a holistic-educational and empowerment approach to its workshops.  We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness.  By acknowledging the physical and emotional challenges patients face on a daily basis, we will encourage and empower participants to be proactive advocates for their care, quality of life, and wellness needs.
Our holistic-educational approach to our support workshops offers participants:
  • A spirit of empowerment to enable members to improve their quality of life
  • Safety, empathy, validation, and much-needed support
  • Factual information and new coping strategies
  • A decreased sense of isolation and alienation for dealing with CMT
  • Interactions with others dealing with similar experiences
  • A sense of community
  • Restoration of a member’s spirit of hope and self-confidence
  • Increased self-awareness and a focus on an individual’s strengths
  • An enlarged social support network
In addition, our findings from these workshops may help to engage research projects to support our community. Quality of life data is critical to implementing evidence-based clinical studies, which will have an overall positive impact, both physically and emotionally, on patients and families living with CMT.
Register today www.hnf-cure.org/cmt-connect/
Questions? Email cmtconnect@hnf-cure.org

Bring a workshop to your area. Email cmtconnect@hnf-cure.org

************************************

Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 186 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France, Poland and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing

Saturday, April 16, 2016

Super Food Saturday Lemon Water with Chia Seeds


This should be a good drink if you feel like you are catching a bug.  The picture may not look very attractive, but it tastes really good. I used honey in mine.  The chia seeds start out crunchy and then they soften up after sitting a bit.

2 cups of  warm water or coconut water
1 1/2 tablespoons chia seeds
1/2 lemon or 1 tablespoon lemon or lime juice
1 teaspoons maple syrup, honey or agave nectar

Blend all together and enjoy.  Take in the morning before eating.


Super Foods Featured : Lemon, Chia seeds

Just some of the benefits from the featured super foods:


Lemons:
  • Have a high concentration of vitamins, minerals, and antioxidants which make your immune system stronger.
  • A good source of phenolic compounds, minerals, essential oils and carotenoids.
  • They have antibacterial and antiviral properties.
  • Help to de-tox the body
  • Can help break down foods for better digestion and help cleanse the urinary track of bacteria.
  • May help with weight loss
  • Help to balance body pH  They help to alkalize the blood. Most of us are too acidic.  This can lower inflammation in the body and make joints feel better.
  • Are good for your skin. Higher vitamin C intake lessens wrinkles and skin dryness.


Chia Seeds

  • Are high in fiber, omega-3 fatty acids, protein, calcium, iron, B1, B3 and magnesium,
  • The omega-3 fatty acids help protect the heart, lower inflammation and increase cognitive function.
  • The fiber may help with weight loss, makes you feel fuller and less likely to snack.
  • Improve insulin resistance
  • Help tackle stubborn belly fat.
  • May slow or halt the growth of cancer
***************************

Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 183 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.
CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston 

Sunday, April 10, 2016

Skillet Sunday- Coconut Ginger Chicken





Ginger Coconut Chicken

2 teaspoons minced garlic
1 bunch green onions sliced
4 ounces of sliced fresh mushrooms
2 tablespoons coconut oil
2 1/2 lbs chicken leg quarters
1 cup chicken broth
2 cans coconut milk
1/2 cup cornstarch
1/4 can baby corn cobs
2 cups frozen stir fry vegatables
2 ounces of grape tomatoes
1 tablespoon curry powder blend or paste
2 teaspoons turmeric
salt and pepper
Jasmine rice cooked

Place coconut oil in the bottom of a Dutch oven.  Once oil is hot, add garlic, ginger, mushrooms and onions, Cook for 2 minutes, then add the chicken pieces. Cook until the chicken pieces are browned. Turn so all sides are browned.

Add the chicken broth and coconut milk. Add the curry powder or paste and the turmeric. Cover, turn heat to low and simmer the chicken for 45 minutes.

Mix cornstarch with just enough water to make a paste. Add to chicken mixture to thicken.

Add the corn cobs and vegetables. Server over jasmine rice.

Serves 6

**************


Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 183 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing

Wednesday, April 6, 2016

Gratitude Leads to Health and Happiness



Just a few statistics about gratitude:


  • 69% of us are grateful when something unexpected that is good happens
  • 62 % of us are grateful for their children and family
  • 52% are regularly grateful to God
  • 49% try to feel gratitude everyday for something simple like a sunset.
  • 16% say it takes something out of the ordinary for them to feel gratful.

Gender Differences

It is a bit tougher for men to feel grateful:
  • 52% of women express gratitude on a regular basis vs. 44% of men

Life Benefits

What can gratitude do for you?
It can:
  • Help you win new friends. Thanking someone for help increase the chances they will want an on-going reletionship with you.
  • It makes you less aggressive. When you are grateful your more empathetic with others.
  • It increases your self-esteem. You will be less likely to compare yourself to others.
  • You will see an increase in your resilence and mental strength.
  • Can help you to see your internal resources are more abundant than you thought.

Health Benefits

  • Grateful people are less likely to abuse alcohol and drugs
  • Men and women with heart disease who practiced gratitude showed significant improvements in heart health.
  • In a study of character strengths, gratitude was found to be the greatest indicator of well-being.

Gratitude and Attitude

  • Research shows appreciating what we have prongs grater positivity and life satisfaciton.
  • Materialistic people are more likely to be depressed and unsatisfied because they have a hard time being grateful for what they have.
  • People who are more grateful are more likely to demonstrate self control. This helps them to make better decisions regarding healthy eating, smoking, avoiding impulse purchases and saving money.

Gratitude and Love

If you say thank you more your could have a better love life. It will make you feel better and saying thank you to your partner will make you feel more connected. They express gratitude to you creating a nice feedback loop.

Improving Happiness


Shawn Achor author of "The Happiness Advantage" suggests the following ways to increase happiness:
  • Write down three things you are grateful for that occurred over the last 24 hours
  • Spend 2 minutes writing down every detail about one positive experience that happened in the last day.
  • Do at least 15 minutes of a fun cardio activity.
  • Meditate every day for two minutes by stopping what you are doing and concentrating on your breathing.
  • At the start of every day send a short message praising someone you know.
Here are some other suggestions:
  • Put visual reminders around f things you are grateful for. I saw a blogger that took a picture every day of things she was grateful for. I could see posting these on pinterest.  You could have pictures of your loved ones or pictures of a great trip.
  • Think of an everyday object and spend a few minutes thinking about all the things you appreciate about it.
  • Think about something in your life you are grateful for and then be grateful for everyone that made that happen. For instance think about your house. Be grateful for all the people responsible for making that happen; the architect, the builder, roofers, carpenters, landscapers, the real estate agent, the people that put in the road, water and electricity.
  • Make it a family practise for each person at dinner to talk about something good that happened that day or something they are grateful for. You could also do this as you tuck in your kids at night.
  • Keep a gratitude jar. Every day I put down 3-4 good things that happened to me or things I am grateful for. I put them on a post-it note and put them in the gratitude jar in the picture at the top of this post. The jar gets really full and is a great reminder of everything good in our lives.
  • Get a bit more sleep each day. Aim for 7 to 8 hours. Most of us do not get enough.
  • Make kindness and giving to others a part of your life.
  • Take time away from your computer, phone, Kindle and iPad.
  • Visit web sites that deal with happiness
       www.happify.com
Take some time to try some on these strategies and find something that works for you.  There are so many benefits for us and those around us when we practise gratitude.

***************************

Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 183 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.
CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing

Sunday, April 3, 2016

Soup Sunday- Mushroom Soup



8 ounces sliced mushrooms
1/4 yellow onion chopped
2 tablespoons butter
4 cups organic mushroom broth
1 cup fat free half and half
1/2 teaspoon dill
salt and pepper to taste

Melt butter in stockpot.  Add onion and mushrooms.  Cook for several minutes until mushrooms and onions are soft. Add the broth. Bring to a boil. Reduce heat and add the half and half.  Add dill, salt and pepper.

Serves 4

***********************************


Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 186 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France, Poland and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing