Run 4 CMT

Tuesday, October 29, 2019

Discovery Run-Starting My Subaru Adventure

Subaru/NSP Car at Discovery Run Milwaukee

"When a day passes it is no longer there. What remains of it? Nothing more than a story. If stories weren't told or books weren't written man would live like beasts, only for the day. The world, all human life is one long story." - Isaac Bashevis Singer, Author

I groaned as the alarm went off at 6:30 am on Saturday morning. It wasn't just the early hour. It was 34 F in Milwaukee and I was signed up for the local running club 15K Discovery run.

It seemed like such a good idea when I signed up for the Super Strider Series. That meant I had to do 8 long distance races to complete the series. Finish all 8 and I would get a club jacket and free entry to the club Holiday Party.

I did race six, the Lake Front Marathon, just three weeks ago. This would be my first race since then. I've marveled at how well I bounced back from the marathon. So I was physically ready for the race Saturday. I just would rather had stayed in my nice warm bed.

In a few months 34F will seem like a heat wave in Wisconsin. But the first cold snap always comes as a shock and takes a bit of getting used to. For me it was flannel lined tights, a smart wool top over my Team CMT long sleeve shirt and a Lycra long sleeve top over it all. I also picked a headband and gloves.

Because this race was Halloween weekend, lots of runners were wearing costumes. I saw a group of six dressed like the group from the TV show Baywatch. The women were wearing red lifeguard swim tops. I cannot imagine how cold that must of been. There was also a 5 mile race at the same event, hopefully they were in the shorter race. Lots of people did wear shorts, including the 2nd place men's finisher. He complimented his outfit with a green tutu.

Well I was well dressed but not fast. The course was an out and back on a bike path. The weather was clear and sunny with little wind.

I had planned on running really easy to get a pace estimate for next weeks Turkey Trot prediction run. That went out the window as the race started. I felt strong so I pushed the pace a bit. It all started when a women ran past me with a walker. No way I was letting her beat me. Then a women that looked to be in my age group passed me. I sped up and kept pushing it to leave her far behind.

Even with pushing the pace a bit, I 'm still not fast. It is amazing how mush I've slowed down in just the past couple of years. When you are as slow as I am, the crowd really thins out. I was running by myself much of the time. I even warmed up enough to shed my top two layers.
I finished in 1:41:03 which was good enough for 5th place.

This was my first event for Subaru. There were 10 ambassadors selected around the country. I was selected as a "story teller". I will see what that means as the year unfolds. For now I will keep telling my story of trying to live an active life and raise awareness of CMT.

It is an honor to partner with Subaru and the National Ski Patrol. I look forward to the experience, even if I have get up on another cold dark morning.

***************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon. In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas. She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 228 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing, CMT disease, CMT and exercise, exercise and CMT, CMT, athlete and CMT.Team CMT, CMT athlete, athlete and CMT, bike4CMT, walk4CMT, CMTA, HNF, Tri4CMT, Walk4CMT, MDA, #kneedeepinwork

Sunday, October 27, 2019

Soup Sunday- Stuffed Pepper Soup

It is fall which brings beautiful fall colors to Wisconsin. It also means cool nights as we grow closer to winter. The weather is now perfect for soup. So I am back to my weekly Sunday ritual of cooking soup for the week. This made a huge amount. I had enough to share with my neighbor and brother. It freezes well too and I put away some for a week when I am too busy to cook.

1 pound ground turkey
1 quart V 8 juice
3 medium peppers ( red, yellow, green) chopped into bite size pieces
1/2 white onion chopped
1 28 ounce can diced tomatoes
1 6 ounce can tomato paste
1 12 ounce can tomato sauce
1 4 ounce can diced green chillies
2 celery ribs chopped
1 tablespooon minced garlic
1 cup rice blend ( white rice, wild rice, quinoa)

In a large stock pot, brown the turkey and onion. Cook until no longer pink. Add all of the rest of the incredients except the peppers and the rice. Bring to a low boil. Add the rice and cook for one hour until the rice is tender. Add the peppers and cook for 5 minutes. Salt and pepper to taste.

Serves 8
**********************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/

Saturday, October 12, 2019

Rest and Recovery

Big Portage Lake, in Land O Lakes Wisconsin

"The body and mind are organically one." - Huxley

Recovery from a marathon is serious business. Running 26.2 miles is not only a physical challenge, its a mental one as well. Recovery for both is important to avoid injury and burnout.

The weeks after a marathon workouts should be limited. For a first time marathon runner, it is suggested to recover one day for every mile run. Some recovery plans say to repeat the last few weeks before the race when effort was tapering to practically nothing.

Since this was marathon #10 and I did train for NY last year, I thought I would be flexible in my recovery plans. My A race for the season will be in Miami. Well two races really, the Aquathlon National Championship ( 1000 meter swim, 5 K run) on November 9th and the Long Distance Duathlon National Championship (2 mile run, 56 mile bike, 13 mile run) on November 10th.

I have a chance to again qualify for Team USA and races in Europe next September. The Aquathon race will take the top 18 in the age group. Twenty one women have already signed up so I will have my work cut out for me. The duathlon race will be a physical challenge, but since only 4 women are signed up, I just have to finish to earn a team spot.

My recovery plan was to go the the Northwoods of Wisconsin to Big Portage Lake. My friend and author Jon Helminak has a home there. If you get a chance check out some of his books. My favorite is a book called "This Token of Freedom". It tells the story of the evacuation of children out of England during WWII. He's written a number of history and travel books.

I've been to 43 states and I think Wisconsin, especially Northern Wisconsin is one of the most beautiful spots in the country. The American Legion Forest Area which I think includes Land O Lakes has the highest concentration of lakes in the world. They are every where. At this time of year there is almost no one around.

Because Land O Lakes is a 5 hour drive it is tough for me to work a trip up there into my workout schedule. It can mean losing a day of working out because of the drive. So this week was perfect for a visit. I was taking the two days after the marathon completely off. Fall is also the perfect time for a visit. As you can see from the picture the colors are stunning. They were at their peak this week.

It would be a week to recharge mentally. My friends house is peaceful and restorative. It is absolutely dead quiet at night. I always sleep really well there. The place settles my soul.
From the comments left in the guest house where I stayed other guests feel the same way. It was a chance to eat good food, sleep in late and have a nice visit with my friend. I get to hear about his work, what he is writing and hear about his latest travels.

I even got in a bit of biking. I bounced back from this marathon faster than any marathon I've done. On Wednesday I did a two hour bike ride in the morning. There is a great bike path that goes by several lakes. Later in the afternoon, I did a bike ride around Big Portage Lake with my friend. I was also able to get out the next day for a bike ride. I got to sit and look at the lake and enjoy it's beauty. I even heard a loon. I helped my friend with a few chores, like putting away canoes and raking leaves.
The week ended a bit early when the weather changed. A cold front with rain moved in so it was time to head back to Milwaukee and back to training.

By Friday I did an easy run and on Saturday a 5 hour ride on my trainer. I'm sure my short visit to the Northwoods helped me to bounce back so quickly. I am mentally prepared now for the push this month to be ready for my A races in November. It just took a bit of rest and recovery.

*******************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/

Monday, October 7, 2019

Marathon #10

"You can't talk about it, you have to be about it." - Matt LeFleur, Coach of Green Bay Packers

When I woke up at 3 am on Sunday I had to ask myself what I was thinking when I signed up for Lake Front Marathon. It would be my 10th marathon, so I knew what to expect on race day.

It seemed like a good idea at the time. I signed up for the Super Strider series for my running club. I had to pick eight long distance races off of a list. My last selection came down to a choice between a 10 mile indoor race on a track or the Lake Front Marathon. I could not bear the thought of running 10 miles in a circle, so LFM it would be. In the back of my mind was possibly running a time that would at least qualify me to run Boston again. I would need to finish the 26.2 miles in 6 hours or less.

When I've had coaches, they always asked what race was my A race. An A race is the most important race of the season. That race for me is the Long Distance Duathlon in Miami in November. It is a National Championship race with spots on Team USA for the World Championship.

So my focus has been to train for the Miami race which is a 2 mile run, 56 mile bike and a 13 mile run. I set up my training plan for my A race and threw in a long run for the marathon each week. It would have to be enough.

I hadn't run a marahon in 4 years, since my last Boston. So I am a little out of practice with racing and preparing. I had a bit of a glitch the week before the race. My running shoes gave out and I had to get a new pair. Then my the bladdar I was going to use with my hydration vest was massively leaaking. I never got a chance to wear the vest during a training run. I finally got the leaking fixed when I took the bladder into a local outfitter.

So I was up at 3:30 to catch the 5:15 bus to the start line. The last bus was at 6 am. I like to arrive early just to give myself a cushion. I am glad I did since all the racers were crammed into a high school cafeteria. I got to stake out a nice spot to spread out my stuff and use the bathroom before it got crowded.

I had 90 minutes to kill. I forced myself to eat some breakfast. My body would need it. I chatted with runners around me and friends that stopped to say hi. When I was walking back from the bathroom a women asked me about what the CMT meant on my singlet. It turns out her grandaughter was diagnosed with CMT. She promised she would join the team.

It was time to line up for the start. My plan was to aim for a 5:20 to 5:30 finish time. I started out with a pace group, but they were running too slow. I felt strong and ran easily. I know going out too fast can have bad consequences for later in the race.

The race had more hills than I remembered. There was also a head wind for most of the day. I've run this particlar race four times. I've never liked the first half of the course. It is all rural with corn fields. I find it really boring. I counted off the miles until the half way point where I would be in the city.

My friends Robert and Cherly Kearney were on the course at 19.5 miles to cheer me on. I signaled I felt strong and shouted out that I had a ways to go. I ran strongly until mile 24 when I just got tired of fighting the wind. I walked for about a mile and then ran in toward the finish. I finished in 5:28 quite a bit slower than my last Boston finish of 4:50. Although not bad considering I did not train too hard. The fact that I felt so strong give me hope and I am thinking about doing another marathon this spring.

Running a marathon really is a lifestyle. I was not solely focused on this race, but was biking, swimming and runnig most days of the week. Training really becomes a lifestyle. It is a lifestyle I've gladly adopted because it helps to raise awareness of CMT. That has become my goal, the running times are secondary.

******************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/

Saturday, September 21, 2019

Meet Your New StoryTeller NSP Subaru Ambassador

Thursday, September 5, 2019

ET Triathlon-Character Building

"Character is the ability to carry out a resolution long after the excitement of the moment has passed." -Cavett Roberts

It's always hard when the alarm goes off early on race morning. On Labor Day Sunday, mine went off at 3:55. I rolled over and thought about just staying in bed. The forecast called for rain and I am not a fan of racing my bike in the rain. I don't even like my bikes to get wet, so I never even ride in the rain if I can avoid it. Bike trainers were invented for days like that.

Still it wasn't raining when the alarm went off and I wanted a good parking spot and to arrive when packet pick-up opened at 5 a.m. I was up and out the door in about 10 minutes since I always lay out my race kit the night before. The car was also packed with my bike, wet suite and tri bag. So I had no excuses. I even remembered to grab my breakfast to take along.

It was pitch dark when I got the race venue at the Rec Plex in Racine. I just did Iron Girl at this location in August. The course would be a bit different since this Experience Triathlon was running this race. It was the first year for this event so they capped the race at 150 athletes. I love smaller races.

I stopped bringing a flashlight to transition since the areas seem to always be lit by flood lights. Not this day. It was pitch dark so I had to set up in the dark. I tested out my bike to find out the chain was jammed against the frame and off of the chain ring. A nice volunteer helped me get my bike all set. Good thing I checked it. I don't always remember to do that. Just one more good reason to get to the venue early. It had been drizzling the whole time I was setting up. By the time I was finished a steady rain had started.

Swim
The swim would be wetsuit legal. The air temperature was 62 F and the water temperature was 72 F. I was cursing myself for bringing my sleeveless wet suit. I was freezing as I waited for the swim start.
The start was self seeded with one athlete starting in a time trial format every few seconds. I seeded myself almost at the very end which was a huge mistake. I kept having to go around athletes breast stroking and back stroking. I lost lots of time trying to get around them. My fault for starting two far back. The 750 meter course was triangle with two loops. We had to get out of the water, go around a pylon and get back in. I kind of liked the format. The short looped was easier to handle mentally. Sometimes the buoys look so far apart it can be mentally challenging. Plus getting out of the water provided a bit of a break.

Bike
We were warned even before the race started that the roads were wet because it had rained during the night. The course was two loops of 6 miles and relatively flat. There were several very tight turns as well so we were warned in pre-race announcement to slow down. It rained heavily all during the bike phase. I took it pretty slow. Bike breaks don't work well in the rain. My only goal for the race was to finish un-injured. My biggest races were still ahead. I just needed this race to make three triathlons to qualify for national ranking. I left my tri bike and home and used my road bike, since it has better handling. I thought it would be more stable if the roads were wet.
I saw many athletes speed past me, not heeding the advise to slow down. I was freezing since I was completely soaked from the rain. I couldn't even use my jacket that I had in transitions because it was soaked through with rain. I made it back to the without incident.

Run
It was still raining when I headed off on the run, but it had slowed to a drizzle. It had been a tough week of workouts for me. This race was on Sunday. On Friday I'd done a 22 mile training run for Lake Front Marathon that I am doing in October. On Thursday I did a 4 hour bike ride as part of my training for the Duathlon National Championship in Miami in November. So I was not expecting a great run split. I took it easy with a run time of about 33 minutes. That time was very close to the first and second place women in my age group. My total time was 1 hr 47, much slower than usual for me and 9 minutes behind the first place in my age group. I was ok with a safe and slower race.

It was a character building day since I never race in the rain. I skipped a race in June because it was raining in the morning. I stayed around for awards to find out I placed 3rd in my age group. My swim and run were pretty close to the first and second place finishers. My conservative bike had placed me lower and I was just fine with that. I qualified for the Age Group Triathlon National Championship in Milwaukee next year. That was a nice little reward for my character building day.

Even better the whole thing including awards was done by 8:45. Looking forward to doing this race next year in hopefully better weather.

************************************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 225 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/

Strider Half Marathon-Hitting the Wall

"Never give up! Failure and rejection are only the first step to success." - Jim Valvano

The first time I did the Strider Half marathon was before I did my first marathon in 1996. That race did not go well. I had to be talked off the ledge by one of my running friends. He said to just chalk it up to experience because bad races happen.

On August 24th I ran the Strider Half Marathon again. It went even worse. I hit the wall and that is the first time that has happened in a race.

The night before I did a long bike ride and went to the race site to check out parking and the park layout. The race would begin and end in the Beer Garden in Esta brook park in Shorewood, Wisconsin.

I was supposed to ride 4 hours, but cut it to 2 1/2 so I would be race ready in the morning.

I got up early so I could be at the race site by 6 am to secure a spot in the parking lot. I did not want to have to park in the neighborhood and walk. I got there plenty early only to remember once I was parked that I had forgotten my breakfast.

That meant I would be running a half marathon on a completely empty stomach. I rummaged through my car to see if I had a spare energy bar but I did not. I had two gel packets for the race. The start time was 8 am.

All went well for about the first 8 miles. I was carrying an iPod and it kept cutting out while playing and playing the same few songs. It was so annoying and distracting.

I was passing the time by counting off intervals up and down a ladder. Starting at 1 minute and going up 1 minute each interval to 10 minutes and then back down. The race took place on a bike path and I was running on the well worn trail on the side of the patch. I decide to go back on the bike trail and my foot caught. I fell and fell hard. I paused for a minute to take a quick assessment. Several ladies stopped to help me and many runners asked if I was OK. I was.

At the 8 mile mark right after my fall I started to feel nausea. I think it was caused by the sport drink I was drinking from my camel bak. It probably was not good on an empty stomach. I was hot and tired and could feel I was running on empty. I had to walk at about mile 10 to go up hill and over a bridge. I had to walk again the last half mile. I've never had to walk in a half marathon before. I never got to take my second gel because it had fallen out of my camel bak. So really was running on empty. Boy was I hungry by the time I finished.

I finished but that is about all I can say. My left leg was covered in blood. I am sure I was quite a site. My finishing time was 2:31:32. That is 10 minutes slower than my half in April. Not the race I wanted just one month before my marathon. The slower time pushed me to 10th in my age group.

I got breakfast after the race and went home and took a nap because I was so tired. That never happens either.

The good news is less than a week later I was able to do a 20 mile run. I also forgot the sandwhich I had made to eat during the run. It took me 3 1/2 hours. I had a bar and some gels along so I was OK. It becomes painful for me to run after about 90 minutes. So if I remember right marathon day will be painful. My muscles in my hips and thighs hurt, no matter how much I train. I carry ibuprofen during the race.
I'll shake off this race, just like I did last time. Hoping for a little race day magic on marathon day.

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/