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Tuesday, September 27, 2011

Welcome Megan Sebeck to Team CMT

Welcome Megan Sebeck to Team CMT.  Megan is serving in the Marine Corp and is from New Windsor New York.  Like many on Team CMT she has a family member with CMT.   Her dad has CMT and she has always admired how he has adapted and overcome his CMT.  She wants to run in honor of her dad and others who suffer from this disease. She says she runs because she can.

She loves to run, is interested in fitness and has been active for sometime.  This weekend Megan ran the Super Spartan Race. It was an 8 mile mud run that turned into a 11 mile run when she was told to go the wrong way.  She had a great time and waited till after the race to don her Team CMT singlet. She didn't want to get it all muddy in the race.

 Megan has the goal of running a marathon soon. There are a number of Team CMT members doing marathons this year so Megan will fit right in.  Megan also likes to travel and was recently in England. Meagn, thanks for your service and welcome to Team CMT. I am so proud to have you on our team.

Chris Wodke
Founder & Manager Team CMT

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT

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