Follow your dreams, for as you dream, so shall you become.”- unknown
Shannon is 33 and lives in southeast
just outside of Philadelphia
with her husband Fran. She's had CMT
symptoms since she was 14. Like a lot of
us it took some time to get an official diagnosis and she got hers just this
Despite a long search to determine just what type of CMT she has,
Shannon is embracing life. CMT is just a part of
who she is.
She has lots of reasons for joining Team CMT. First she says she wants to get back in shape. She wants to create awareness and help raise funds for research. She just got the couch to 5 K plan I sent her and she is going to start getting into running shape right away. She is going to pick a race and use it to raise funds.
She wants to be active so she can stay strong and show everyone they can achieve their dreams no matter how big they might be.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 106 members in 24 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.