Follow by Email

Friday, February 1, 2013

Team CMT News

Cheryl Monnat GLMS 10 K

Team Milwaukee
Even though it's winter we still have Team CMT members running events. Cheryl Monnat took 2nd place in her age group at the Great Lakes Multi Sport 10 K in Franklin on Sunday. She has a time of just over 50 minutes. Cheryl has been working hard this season running lots of speed workouts. Keep up the good work Cheryl

Team Dallas
Morgan Johnson and Joyce Kelly are just back from triathlon camp in Kona Hawaii. While there they got the idea other Team CMT members may want a camp of their own next year. Joyce has approached Play Tri of Dallas to put on a camp next year just for CMT affected athlete's, their friends and families.  The camp is in the early planning stages and I will let you know more as details become available.

Joyce was just featured in an issue of Fitness Dallas magazine. One of our most recent team members Shelly Kautz found us when she saw the story.

If that was not enough Joyce made a presentation to business about sponsoring an event in the Dallas area.  Tentative date will be next April. Stay tuned for more details.

Bike New York
Calling all Bikers!! The Hereditary Neuropathy Foundation (HNF) is thrilled to have been chosen for the third year as a Charity Partner for the TD Bank Five Boro Bike Tour. Please consider riding for a cure with us on Sunday May 5, 2013. HNF Riders will get VIP treatment which includes breakfast and lunch as well as priority start and special bike parking at the start. We would love for you to ride and support the cause. Click below for additional information
 
Create your personal fundraising page to help us find a cure and new treatments for CMT! http://hnf.donorpages.com/BikeNewYork2013/
Questions: Email courtney@hnf-cure.org
  
HNF is making great progress through our Therapeutic Research in Accelerated Discovery (TRIAD) program, funding cure-driven research. Find out all the latest developments: http://hnf-cure.org/stayinformed/ 



We continue to grow. We've now reached 117 members.  Remember if you have not gotten your Team CMT shirt ,  we need to do a story first.  We all want to get to know you.

*************

Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 116 members in 25 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.







No comments:

Post a Comment