CMT Connect Workshop

Participate in an HNF CMT-Connect workshop in your area!

HNF encourages a holistic-educational and empowerment approach to its workshops.  We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness.  By acknowledging the physical and emotional challenges patients face on a daily basis, we will encourage and empower participants to be proactive advocates for their care, quality of life, and wellness needs.

Our holistic-educational approach to our support workshops offers participants:

• A spirit of empowerment to enable members to improve their quality of life
• Safety, empathy, validation, and much-needed support
• Factual information and new coping strategies
• A decreased sense of isolation and alienation for dealing with CMT
• Interactions with others dealing with similar experiences
• A sense of community
• Restoration of a member’s spirit of hope and self-confidence
• Increased self-awareness and a focus on an individual’s strengths
• An enlarged social support network

In addition, our findings from these workshops may help to engage research projects to support our community. Quality of life data is critical to implementing evidence-based clinical studies, which will have an overall positive impact, both physically and emotionally, on patients and families living with CMT.

Register today www.hnf-cure.org/cmt-connect/
Questions? Email cmtconnect@hnf-cure.org
Bring a workshop to your area. Email cmtconnect@hnf-cure.org

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Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015 and 2016

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 186 members in 32 states. We also have members in Australia, England,Scotland, Canada, Vietnam, Turkey, Finland, Scotland, France, Poland and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link

Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

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