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| Team CMT members at Miami Man Triathlon |
It's the fight alone that pleases us, not the victory." -Blaise Pascal
On November 12th Team CMT members Joy DeCaro Perry and Chris Wodke competed in the Miami Man Triathlon in Miami Florida.
The race was a National Championship for Aqua Bike and Long Course Triathlon. Joy competed in the Aqua Bike race which was a 1.2 mile swim and 56 mile bike. Chris completed in the Long Course Triathlon which added a 13.1 mile run to the swim and bike distances.
It was a challenging day with 20 mph winds and 88 degree heat. These types of conditions can be tough for any athlete, much less one with Charcot-Marie-Tooth.
Just finishing a race under these conditions is a victory. Both athletes raced in the Physically Challenged Division, each taking 1st place.
So Team CMT has two National Champions. The race is also a qualifier for the International Triathlon Union World Championship race in Fyn, Denmark.
Chris already qualified for the race in Denmark in Aquathlon at the National Champsionship in Austin, Texas. Aquathlon is a swim and running race.
We were both proud to be racing in Miami and raising awareness of CMT. Chris also used the race as a fundraiser for CMT programs and research.
You can donate at:
https://hnf.donorpages.com/TeamCMT/ChrisWodke/
*****************************
Chris
Wodke
Founder
& Manager Team CMT
www.run4cmt.com
Chris is
a triathlete and long distance runner. She is a three time participant of the
Boston Marathon. In 2012 she finished
2nd at Boston
in the Mobility Impaired Division. She was on the course in 2013 when the bombs
exploded.
She has
appeared three times at the Paratriathlon National Triathlon Sprint
Championship. She was the 2012 and 2014 National Champion Paratriathlon Open
Division Champion.
In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented TeamUSA at the Aquathon ITU World Championship in Chicago in 2015 and at the World championship in Cozumel in 2016.
In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team
In 2014 she represented the U.S. as a paratriathlete at the Pan-American
Triathlon Championship in Dallas ,
Texas USA
for the World Champsionship.
She
travels around the country raising awareness of CMT.
She is
the author of the book, “Running for My Life” that details her experience as a
CMT affected athlete.
Team CMT
is a group of athletes and supporters working to raise awareness and to find a
cure for CMT. We have 212 members in 38 states. We also have members in Australia , England ,
Scotland , Canada , Vietnam ,
Turkey , Finland , Scotland ,
France , Poland , Iran ,
Norway and Sweden . If you wish to join us
visit our web site; www.run4cmt.com or www.hnf-cure.org
CMT or
Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It
affects over 155,000 Americans (as many as MS). It is a disease of the
nerves that control the muscles. It is slowly progressive, causing loss of normal
function and or sensation in the lower legs/feet and arms/hands.
Symptoms
include; muscle wasting in the lower legs and feet leading to foot drop, poor
balance and gait problems Atrophy in the hands causes difficulty with manual
dexterity.
Structural
foot deformities such as high arches and hammer toes are common.
Poor
tolerance for cool or cold temperatures and many people have chronically cold
hands and feet.
Additional
symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.
Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/
Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/
http://cmtamputee.wordpress.com/
Follow CMT Author Chris Steinke
https://cmtandmesite.wordpress.com/2017/01/30/what-is-charcot-marie-tooth-disease/
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