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Thursday, July 28, 2011

Team CMT Softball Team

The campaign to raise awareness has found a brand new venue in Milwaukee  Team CMT now has a softball team helping us to raise awareness of Charcot Marie Tooth Disorder.  Team CMT member Cheryl Monnat is the sponsor and organizer of the team’s effort.  The team had been sponsored in past years by Johnson Controls. The company decided this year not to sponsor the team. Cheryl came up with the idea of sponsoring the team and paid for the team fees and their Team CMT shirts.  This team is wearing the same STAR logo as the athletes on Team CMT. This is a reminder of our Strategy to Accelerate Research Program and the part we all play in raising funds and awareness for the CMTA.   

She asked me if it would be ok for the team to do this. I was so excited the night she told me I couldn’t sleep.  It is really incredibly how much Team CMT has grown since our debut at the end of April. Thanks to Cheryl and all the players willing to help us raise awareness.

The players are:
Back row left to right - Janie, Jackie, Liz, Shelly, Jodi, Kate, Jennifer
front row kneeling - Cheryl, Lisa, Gloria
Team manager - Gloria
Team members absent - Angie, Bess, Judy, Jen, Kim

Milwaukee Recreation Dept Womens Social League - Monday at Sijan #4

Chris Wodke
Founder & Manager Team CMT

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

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