Monday, July 4, 2011
Welcome Paul Kachelmeier to Team CMT
Paul is no stranger to charity events. He ran the Anchorage Marathon for Leukemia Team in Training and has ridden for MS. Paul is very active in his church so he is used to giving back to others. He eagerly joined Team CMT when I issued the invitation.
He loves the outdoors. In addition to running he likes to camp, mountain bike, canoe and roller blade. He recently got a kayak and is enjoying exploring local Madison lakes and rivers. He likes running 10 K's and half marathons to stay in shape. In the winter he enjoys cross country skiing.
He also enjoys the local arts scene in Madison. He is a musician himself playing in a local band and at his church. He enjoys travel, exploring cities, architecture, museums and concerts.
I don't when he finds time to work out, but I am glad to have him on the team.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.