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Sunday, September 2, 2012

Meet the Wright Family

Darrell Wright and his family

  " Little by little one walks far" Peruvian Proverb
Darrell and Cristina Wright are the 2nd husband and wife team  from Arizona. They join Ericka and Tim Steffen from Flagstaff.

Cristina, her brother, mother, grandfather, and now their daughter, all have CMT.

While Darre;; doesn't have CMT,he lives with it in a different way every day.
He says "There are so many things I am now. I am my wife's hands when she can't use them, her support when she is having trouble walking."

 They met after he was in the military for almost 6 years, he is now a 20 year veteran of the Air Force. They've have been married for 14 years now.

He is a Master Sergeant looking to retire from the Air Force in a few years in or around Colorado Springs or Denver CO.

Dwight says he I knows more about CMT than most doctors they have ever gone to see.

He has been looking for a way to get involved somewhere for many years.  His wife and her family are excited to have found an organization focused on CMT.  

 HNF and Team CMT, are perfect fit for him.because he hopes to really help, get involved, raise awareness, and make a difference. He is excited to find us and get involved, not just for me but for my family and EVERYONE living with CMT.

 Darrell has big plans as an athlete.He plans on putting together teams for races such as Spartan and Tough Mudder alongside the preparation for hisfirst Triathlon (Olympic). His ultimate goal will be to complete a 70.3 and finally full Ironman. He would love nothing more than to run for support of my family and all those who have the many different types of CMT.

His first event is Labor Day weekend.Here is the link to his fund raising page.

http://hnf.donorpages.com/TeamCMT/DarrellWright/

We have a long way to go in our fight against CMT, but race by race and member by member we are going far.

Thanks Dwight  and Cristina for joining Team CMT and running for those who can't. 


Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

 
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
 
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
 
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
 
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

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