|Team CMT at Bike New York|
"You must be the change you want to see in the World."- Mahatma Gandhi
Team CMT members have been busy with all kinds of activities to raise awareness of CMT and money for CMT research.
|2012 Summer Olympic and Para-Olympic Teams at White House|
What is better than being a National Champion cyclist or competing at the Para-Olympics? Well maybe joining other Olympic and Para-Olymic athletes at the White House. Team CMT member got a chance to go the White House this week. What a thrill and an honor for Anthony and well deserved!
|Dells Half Marathon|
|Schlitz Park 5K|
Our athletic Team CMT members have been busy all over the country. Robert Kearney and Cheryl Monnat of Milwaukee, particpated in two races this week. On Thursday they ran in the Schlitz Park 5K where Robert won 2nd in his age group. On Saturday they also ran in the Wisconsin Dells half marathon. Way to go Robert on the medal. Your age group is tough one. They ran in the cold and rain on Thrusday which should be good training for the Dublin Marathon they will be running at the end of October.
Team CMT was represented at the Tri Rock Triathlon in Lake Geneva. They had to get up at the insane time of 3:30 and 4:00 a.m. There should be some kind of award for that. No pictures from the event yet. I will post those when the pro pictures are put up for sale. I did have a nice picture from when Kevin represented Team CMT at the Pleasant Prairie Triathlon this June.
|Kristin Crosby Cezat|
Other members are busy training for events. Kristin Crosby Cezat of Orlando Florida is just two weeks away from her Iron man Florida race. Joe Torello and Kristin Harris are training for the Philadelphia Half Marathon.
|Joy Von Werder|
Joy Von Werder of Orlando Florida,just finished up the design today for some Team CMT tee shirts we can sell for fundraising. More details to follow.
HNF President Allison Moore of New York, represented Team CMT at a recent conference. Part of her presentation was about Team CMT. I did a PowerPoint slide with a college of Team CMT pictures. We looked great so keep those pictures coming. There are some really exciting new programs on the way to help raise awareness that we will tell you about soon.
So many of you on Team CMT are working so hard. It is so inspiring to see all the different things team member are doing to carry on our mission. I am so proud to be part of this team. Thanks to everyone for contributing in your own unique ways! Whether racing, presenting at a conference or meeting the President at the White House we are all making a difference.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.