Site to raise awareness for Charcot Marie Tooth. Discuss my quest to run the Boston Marathon while having CMT. Talk about training and doing marathons, half marathons, triathalons and duathalons. Discuss being an athlete with a disability.
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Thursday, May 22, 2014
I didn't Want it to End This Way
My Saturn Post Accident
“ The gem cannot be polished without friction, nor man
perfected without trails.- Chinese Proverb
I thought when I got back from the Boston Marathon life
would be less hectic. I kept reminding myself of all the items on my “To Do”
list I would tackle after I got back.
Training for a marathon can be time intensive and I was looking forward
to more free time.
Shortly after I got back I got an email from the
International Triathlon Union (ITU) outlining a series of required tests. The
tests had to be completed by June 1st by all paratriathletes that
wanted to compete in an ITU race. Since
I was leaving for Dallas
on May 23rd, that meant I had to have my testing done before I left.
The tests consisted of a 100M and 400 M swim, strength test
(push up, pull ups, sit ups); Cooper Test (12 minute run) 1 K bike time trail and
a 1000 M and 400 M run. My coach
conducted the tests over four different nights.
So in addition to workouts, clinics, work, house hold
chores, doctor appointments, and getting
new orthotics made, I had to get in this testing. I also
had to pack for my trip to Dallas,
which means taking my racing pack in for a tune-up and packing.
Monday night I felt the full force of all those commitments.
I started work at 6 am. After work I drove 45 minutes to meet my coach for my
swim and strength tests. Then it was off to the bike shop to pick up my bike. A
quick dinner then it was off to a ski patrol meeting. As I drove home I glanced at my car clock and
saw it was 8:50, which meant I would not be home in time to get 8 hours sleep.
I thought about all the prep I had to do to be ready for the next day.
It was dark and raining hard so visibility was not good.
Suddenly I noticed a red sports car stopped on street right in front of me. I
pressed on the breaks and was able to stop, but as soon as I stopped, I heard
the sickening sound of glass breaking and crashing medal. I looked into the
rearview mirror and saw the vehicle pushing my SUV. As I was pushed I thought I
was going to be seriously hurt. Fortunately I did not hit anyone or anything.
The car that caused the whole thing sped off. I actually thought both cars took
Immediately a witness was at my car door asking if I was
ok. They pried open the door so I could
get out. They dialed 911 and handed me
the phone. The dispatcher said since no one was hurt they would not send a
police officer. I called my brother to
come and get me. I could see my SUV was totaled and would not be drivable.
As I was exchanging information with the other driver who
had stayed, a police officer on patrol stopped and did an accident report. The other driver was lobbying hard that it
was my fault. I spoke to the officer later and said I had stopped safely and
the officer said after thinking things over he believed I was not at fault. Based on the damage done to my vehicle I
think the other driver was following too close and going too fast. About that same time I noticed I was getting
a headache, back and neck pain.
When the tow driver arrived he declared the car would be
totaled. I knew that based on the age of the car (10 Years) and mileage
(152,000) that would have happened even if the damage was not extensive.
I loved my car and was not planning on replacing it any time
soon. I can certainly afford a new one,
but this one had been so great. I spent almost nothing on it except for routine
maintenance. It was great in snow and always started even in the coldest
weather. It was my favorite color
emerald green. Even the one time the shift cable broke, it happened right as I
cruised into my work parking lot. Now that is a great car.
When I bought a new one I was hoping to give this car to a
friend or relative to use. I thought I would still be able to see it and drive
it occasionally. It had been such a
great car, I did not want to see it a mangled mess. That car and I had been on a lot of
adventures together; skiing, kayaking, camping and road trips to triathlons.
All good times and all made possible by my reliable friend.
I know you should not feel a personal connection to a thing,
but I did. This car was like a loyal friend I could always count on. I almost cried when I cleaned all my
belongings out of it at the body shop.
It looked so sad and lost, mangled the way it was. It deserved a better
So when I get back from Dallas it will be time to car shop. I am just
not sure it is going to be the same. If I could buy another Saturn just like
this one I would, but the company went out of business. So goodbye Saturn. I
will miss you!
& Manager Team CMT
a triathlete and long distance runner. She is a two time participant of the
Boston Marathon. She was the 2012
National Champion Paratriathlon Open Division. In 2013 she qualified as a
member of the Team USA Duathlon Team. And was eligible to compete in 2014 at
the Age Group World Duathlon Sprint Championship in Pontevedre Spain. She chose instead to represent the U.S. at the Pan-American Triathlon Championship
in Dallas, Texas.
the author of the book, “Running for My Life” that details her experience as a
CMT affected athlete.
Team CMT is
a group of athletes and supporters working to raise awareness and to find a cure
for CMT. We have 150 members in 29 states. We also have members in Australia, Canada,
Vietnam, Turkey, Finland
If you wish to join us visit our web site; www.run4cmt.com
Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It
affects over 155,000 Americans (as many as MS). It is a disease of the
nerves that control the muscles. It is slowly progressive, causing loss of
normal function and or sensation in the lower legs/feet and arms/hands.
include; muscle wasting in the lower legs and feet leading to foot drop, poor
balance and gait problems Atrophy in the hands causes difficulty with manual
foot deformities such as high arches and hammer toes are common.
tolerance for cool or cold temperatures and many people have chronically cold
hands and feet.
symptoms may include fatigue, sleep apnea, breathing difficulties and hearing
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