September is CMT awareness month, so you may see lots of posts and shares from affected friends and family members.
First up is our project with California Pizza Kitchen - Pizza with a Purpose
FUNdraier in support of:
Hereditary Neuropathy Foundation
Monday September 29th, 2014
All Day
Valid at a number of California Pizza Kitchens. See the full list at
http://www.hnf-cure.org/california-pizza-kitchen-campaign/The fund raiser in the Milwaukee Area will be at:
Bayshore Town Center
5665 N Centerpark Way
Glendale, WI 53209
You will need to present a flyer and you can get one from me for the Milwaukee location or for other locations at the link. These are being held across the country. Come out and meet me in Milwaukee meet others with CMT in your city.
Bring in the flyer, present it to your server and California Pizza Kitche will donate 20% of your check to the Hereditary Neuropathy Foundation to support CMT research and programs.
Purchases include dine in, take out, catering and all beverages.
Please do not distribute the flyer in or around the restaurant. Tax and gratuity are excluded.
Please join us and lets raise some money and awareness for CMT!
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| Team CMT members at Bike New York |
Chris
Wodke
Founder
& Manager Team CMT
www.run4cmt.com
Chris is
a triathlete and long distance runner. She is a three time participant of the
Boston Marathon. She was the 2012
National Champion Paratriathlon Open Division. In 2013 she qualified as a member
of the Team USA Duathlon Team and was eligible to compete in 2014 at the Age
Group World Duathlon Sprint Championship in Pontevedre Spain . She chose instead to represent the U.S. as a paratriathlete at the Pan-American
Triathlon Championship in Dallas ,
Texas
She is
the author of the book, “Running for My Life” that details her experience as a
CMT affected athlete.
Team CMT
is a group of athletes and supporters working to raise awareness and to find a cure
for CMT. We have 152 members in 30 states. We also have members in Australia , Canada ,
Vietnam , Turkey , Finland
and Iran .
If you wish to join us visit our web site; www.run4cmt.com
or www.hnf-cure.org
CMT or
Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It
affects over 155,000 Americans (as many as MS). It is a disease of the
nerves that control the muscles. It is slowly progressive, causing loss of
normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms
include; muscle wasting in the lower legs and feet leading to foot drop, poor
balance and gait problems Atrophy in the hands causes difficulty with manual
dexterity.
Structural
foot deformities such as high arches and hammer toes are common.
Poor
tolerance for cool or cold temperatures and many people have chronically cold
hands and feet.
Additional
symptoms may include fatigue, sleep apnea, breathing difficulties and hearing
loss.
Additional Link
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Marathon Bombing
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