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Sunday, April 24, 2011

Piano Prodigy Vows to Raise $1 Million for Research

Fredrich Buechner said " Calling is the place where your deep gladness meets the World's great need."

Both are combined in Alex Amble, a 15 year old piano prodigy  fom Minnesota whose has pledged to raise $1 Million for CMT research with his music.   Alex has  Charcot Marie Tooth Disease and is helping the MDA to find a cure with his project.  He got is diagnois two years ago.  He also has the unique ability to piano backwards and upside down.

Alex began playing the piano when he was 3. He has composed a piece of original music you can see performed at u tube. Alex began composing this song when he was 11. The song titled "When the Sun Goes Down"  is part of a CD he is selling on line.
If you buy the song all the proceeds go to the MDA for CMT research. If you buy the album a portion of the proceeds will go to MDA research.
You can see his page and purchase his album from his web page.
Alex says he is a big dreamer. He isn't just raising money, he is showing raising visability for CMT. He is being a great role model as well. CMT will slowly steal his ability to play.  Let's hope he is successful in reaching his goal. All of us with CMT are hoping for a cure. We each hope to stop CMT from taking away our deep gladness. There is no telling what Alex can accomplish. There is not telling what you can accomplish when you answer your calling.

Chris Wodke
Founder & Manager Team CMT

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

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