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Sunday, April 17, 2011

Recruiting Athletes for Team CMT

Ever see the big name athletes in  races and triathalons wearing their team uniforms. Wish you could be sponsored too or part of a team?  You have a chance to join Team CMT. Team CMT is now recruiting Triathletes, Runners, Duathletes, and fittness nuts to become members of Team CMT.
I am seeking team members to help me raise awareness of Charcot Marie Tooth Disease. 2.6 Million people worldwide have this disease and most medical professionals of never heard of it.

A few facts about CMT
  • It is the most common inherited neuropathy, affecting 150,000 Americans.
  • Is a slowly progressive, causing deterioration of peripheal nerves that control sensory information and muscle function of the foot/lower let and hand/forearm.
  • Causes degeneration of the peroneal muscles (located on the front of the leg below the knee.
  • Causes foot drop, walking gait problems,  high arches, hammer toes, problems with balance, problems with hand function, loss of normal reflexes and curvature of the spine.
  • There is no effective treatment, although physical therapy and moderate activity are beneficial.
  • Can in rare instances cause severe disability.
  • Affects all genders and races.
  • If one parent has CMT there is a 50% chance of getting the disease.
  • The gene that causes CMT has been identified.
  • STAR- the Strategy to Accelerate Research- is the effort to fund research. The goal is to find a treatment in 3-5 years.
I have set up a web site (http://www.run4cmt.com/) to raise funds for reasearch and raise awareness. The main function of the Team CMT is to raise awareness.  Team CMT members will get a high quality Eastbay running singlet with the Team CMT logo.  We only ask you wear the singlet when competing, then send a picture. Pictures will be posted on the Run 4 CMT Facebook page.  Take a moment to visit the website at http://www.run4cmt.com/ to learn about this effort. Select the Team CMT tab to see the singlet and join the effort. Our goal is a world without CMT.   What keeps me going is we are so close to a cure. Please help us get closer.  Visablity means awareness. Awarness will be better diagnosis by the medical community and more funds for research.

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