Charlie is a 52 year old marathoner from White Pines, New York. He is currently training for the Philadelphia Marathon on November 20th. He is in Team CMT member Jude Burton's circle of friends. Jude will be running the half marathon the same day.
Charlie describes himself as a doer. He put together this fund raising video for his marathon effort. When I watched the video I can see why Charlie runs. All of us on Team CMT run for those like Michael affected by this disease. We run because we can and we run for those that can't. Our mission and vision is a world without CMT. Charlie told me he is excited up the Philadelphia run. Running much less running a marathon is out of reach for most of those affected by CMT.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.
Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT