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Sunday, June 14, 2015

A Big Weekend for Team CMT

Liza Stenz rerpresenting Team CMT at Rock and Sole Half Marathon



Inaction breeds doubt and fear. Action breeds confidence and courage. If you want to conquer fear, do not sit at home and think about it. Go out and get busy.” – Dale Carnegie
It's Team CMT news today instead of a recipe.  I just have so much to publish, I thought I would take a break from recipes. It will return next week.
It was a big weekend here in Milwaukee for Team CMT. It was 54 F and raining but that did not keep Team CMT members from particpating in three seperate events in our home state of Wisconsin.
The Rock and Sole Half Marathon had over 8000 participants including Team CMT members Liza Stenz, Robert Kearney and Cheryl Kearney.  Liza used the event to raise money for our sponsor the Hereditary Neuropathy Foundation. Last time I saw an update team members have raised $90,000 for CMT research and programs.  This is the second time Liza has done the event. Finishing a 13.1 mile race is a big accomplishment. Well done Liza!
With 8000 runners on the course you can bet lots of spectators saw our Team CMT singlets.  Robert and Cheryl are two very active members. These two are about to celebrate their 1 year anniversary. Last year, they asked for wedding gifts to be directed to the HNF. Here they are at the finish.
Robert and Cheryl Kearney at Rock and Sole Half  Marathon

They are celebrating with a beer at the Summerfest grounds, because this is Milwaukee and what better reward after running 13 miles. These types of events are old hat to this couple. Robert is a Iron Man Wisconsin finisher and they have both completed multiple marathons including the Mt. Fuji marathon in Japan.  Thanks guys for representing Team CMT!
The Ragnar was also run this weekend. It is a 200 mile relay race from Madison Wisconsin to Chicago. Over 500 teams of 6 to 12 members run in a relay all night.  Team CMT member Dawn Frizell ran as part of team Off Kilter and represented Team CMT.
 Dawn has been very active for us and lives in Appleton Wisconsin. I hope to meet Dawn and Liza sometime very soon. Dawn has done the Ragnar multiple times. She is a talented long distance runner who has done many races for Team CMT.  So proud to have you on the team!
Finally I attended in cycle racing clinic sponsored by Wisconsin Women's Cycling
Chris Wodke at Wisconsin Women's Biking Clinc

The Tour of America's Dairyland bike race series is going on and the sponsors hope to recruit more women to race.  I did not have on my Team CMT singlet since I save it for rides and races. The black top I was wearing is embrodiered with a small "Team CMT" and the web site. 
At lunch one of the women in the clinic said she knew about CMT because she works in the genetic lab at Childern;s Hospital in Milwaukee.   I was wearing the jacket because it was so cold. So sometimes the simplest things we do can spead awareness for our cause.
I am so proud of all the members of Team CMT. We may not be the runners with the strongest and fastest bodies, but we have the strongest hearts.  We run, bike, walk, swim, and lift weights to give a voice to those that can't.  There are no victims here. Just ordinary people making a difference. How does CMT stand a chance against in the face of such determination.  This type of effort is repeated on most weekends in many parts of the country.
We now have 167 members in 32 states.  We keep growing and we won't stop until we have a cure for CMT.
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Chris Wodke at Aquathlon National Championship 2014

Chris Wodke
Founder & Manager Team CMT
www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship. She has qualified to represent Team USA at the Aquathon ITU World Championship in Chicago in 2015.  

 In 2014 she represented  the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete.

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6


Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have 165 members in 32 states. We also have members in Australia, Scotland, Canada, Vietnam, Turkey, Finland, England and Iran. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org


CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Additional Link
Follow CMT affected Paratriathlete Timmy Dixon
http://cmtamputee.wordpress.com/

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