Site to raise awareness for Charcot Marie Tooth. Discuss my quest to run the Boston Marathon while having CMT. Talk about training and doing marathons, half marathons, triathalons and duathalons. Discuss being an athlete with a disability.
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Friday, March 18, 2016
HNF Sponsors CMT Connect Workshop
Participate in an HNF CMT-Connect workshop in your area!
HNF encourages a holistic-educational and empowerment approach to its workshops. We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness. By acknowledging the physical and emotional challenges patients face on a daily basis, we will encourage and empower participants to be proactive advocates for their care, quality of life, and wellness needs.
Our holistic-educational approach to our support workshops offers participants:
A spirit of empowerment to enable members to improve their quality of life
Safety, empathy, validation, and much-needed support
Factual information and new coping strategies
A decreased sense of isolation and alienation for dealing with CMT
Interactions with others dealing with similar experiences
A sense of community
Restoration of a member’s spirit of hope and self-confidence
Increased self-awareness and a focus on an individual’s strengths
An enlarged social support network
In addition, our findings from these workshops may help to engage research projects to support our community. Quality of life data is critical to implementing evidence-based clinical studies, which will have an overall positive impact, both physically and emotionally, on patients and families living with CMT.
Long Island, New York: Friday, May 6, 2016 (7:00pm-9:00pm) Sachem Library 150 Holbrook Road Holbrook, NY 11741
New York City: Thursday, April 28, 2016 (7:00pm-9:00pm) 401 Park Avenue South, 10th Floor New York, NY 10016
Rochester, New York: Tuesday, May 31, 2016 (6:00pm-8:00pm)EquiCenter 3247 Rush Mendon Road Honeoye Falls, NY 14472