Team CMT started with 3 members at our first race in Brown Deer Wisconsin. Cheryl Monnat, Robert Kearney and Chris Wodke first wore the Team CMT singlet at the Deer Run 10 K on April 27, 2010. Since then we have grown to 62 runners, walkers, triathletes and cyclist in 16 states. Once we have the new Team CMT singlets with the new HNF logo our recruiting is rally going to take off. I look for us to grow even more in the next 6 months.
The other amazing thing about our team is we have 13 members with CMT. Many of them were told not to run or exercise too hard. They are really defying the odds to be competing. We also have two elite triathletes on the team. Morgan Johnson is a member of the U.S. Team and competed in Bejing this last September. The other is Anthony Orlando, he is an up and coming elite triathlete racing in Minnesota.
I have shared the story of many of our athletes on the blog. Look forward to even more in the coming year as we add members to the team. You are all awesome and you inspire me everyday. Members race to raise awareness and to raise money for research. Some have relatives affected by CMT, some joined just because we asked. Your support means more than we can possibly express. Thank you all. You are doing great things! We are going to make a difference and it starts right here with Team CMT!
I thought the members of the team might enjoy seeing who is all on the team and where we live. The members are listed in the order they joined the team.
Chris Wodke (Manager) Milwaukee ,Wisconsin
Robert Kearney Indianapolis , Indiana
Scott Stoner Shorewood Wisconsin
Anthony Orlando Jr. River Falls, Wisconsin
Glydnis Mack Milwaukee , Wisconsin
Ruth Mack Milwaukee, Wisconsin
Kim Petak Milwaukee , Wisconsin
Jude Burton Philadelphia , Pennsylvania
Terri Hofstede Waukesha , Wisconsin
Paul Kachelmeier Monona , Wisconsin
Jane Krukar Eagle , Wisconsin
Jessica Knowles Golden , Colorado
Kevin Klein Franklin, Wisconsin
David McCarthy Wayland, Massachusetts
Dawn Fritzell Appleton , Wisconsin
Ericka Wiltenmuth-Steffen Flagstaff , Arizona
Tim Steffen Flagstaff , Arizona
Morgan Johnson Dallas, Texas
Dr. Robert Chetlin Morgantown, West Virginia
Donna DeWick London , England
Jayson Faires Fairfax, Virginia
Kathy Stultz Oconomowoc , Wisconsin
Pam Stultz Maple Grove, Minnesota
Allissa Faires Fairfax, Virginia
Briana Faires Fairfax, Virginia
Shirley Weatherford Burnside , Kentucky
Rick Weatherford Burnside , Kentucky
Cody Weatherford Burnside , Kentucky
Bill Devlin Lake Mills , Wisconsin
Megan Sebeck New Windsor , New York
Alyssa Flagge Oak Creek, Wisconsin
Tashua Kutzhals Fairfax, Virginia
Briana Faires Fairfax, Virginia
Gloria Frigerio Milwaukee , Wisconsin
Kevin Roskopf Brookfield , Wisconsin
Brett Sadler Eagle , Wisconsin
Jim Sullivan Wauwatosa, Wisconsin
Tony Tanksley Sacramento California
Charles Norris Philadelphia , PA
Michael Gene Falcone Philadelphia, PA
Katie Ayala Fredricksburg Va
Richard Cook Fredricksburg Va
Ruth Cook Fredricksburg Va
Will Cook Fredricksburg Va
Tosha West Midland TX
Charlie West Midland TX
Cody West Midland TX
Emmalee West Midland TX
Dale Christine Lopez Oak Lawn, Illinois
Shelia Ryan Sandusky Ohio
Mary Louie Westbrooke, Maine
Shannon Colson Sandusky Ohio
Ryan Sevier Sandusky , Ohio
Patricia Jett Fredericksburg , VA
Vince Fischer Sandusky , Ohio
William Platt Charleston , West Virginia
Barbara Vonata Richmond, Virginia
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.
Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT
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