Follow by Email

Friday, January 6, 2012

Meet the Members of Team CMT

Team CMT started with 3 members at our first race in Brown Deer Wisconsin.  Cheryl Monnat, Robert Kearney and Chris Wodke first wore the Team CMT singlet at the Deer Run 10 K on April 27, 2010. Since then we have grown to 62 runners, walkers, triathletes and cyclist in 16 states.  Once we have the new Team CMT singlets with the new HNF logo our recruiting is rally going to take off. I look for us to grow even more in the next 6 months.

The other amazing thing about our team is we have 13 members with CMT.  Many of them were told not to run or exercise too hard. They are really defying the odds to be competing.  We also have two elite triathletes on the team. Morgan Johnson is a member of the U.S. Team and competed in Bejing this last September. The other is Anthony Orlando, he is an up and coming elite triathlete racing in Minnesota.

 I have shared the story of many of our athletes on the blog. Look forward to even more in the coming year as we add members to the team.  You are all awesome and you inspire me everyday. Members race to raise awareness and to raise money for research. Some have relatives affected by CMT, some joined just because we asked. Your support means more than we can possibly express. Thank you all. You are doing great things!  We are going to make a difference and it starts right here with Team CMT!

I thought the members of the team might enjoy seeing who is all on the team and where we live. The members are listed in the order they joined the team. 

Chris Wodke (Manager)      Milwaukee,Wisconsin
Cheryl Monnat      Whitefish Bay, Wisconsin
Robert Kearney      Indianapolis, Indiana
Scott Stoner      Shorewood Wisconsin
Anthony Orlando Jr.      River Falls, Wisconsin
Glydnis Mack      Milwaukee, Wisconsin
Ruth Mack      Milwaukee, Wisconsin
Kim Petak      Milwaukee, Wisconsin
 Joyce Kelly      Dallas, Texas
Jude Burton      Philadelphia, Pennsylvania
Terri Hofstede      Waukesha, Wisconsin
Paul Kachelmeier      Monona, Wisconsin
Gary Krukar      EagleWisconsin
Jane Krukar      Eagle, Wisconsin
Jessica Knowles      Golden, Colorado
 Kevin Klein      Franklin, Wisconsin
David McCarthy      Wayland, Massachusetts
 Dawn Fritzell      Appleton, Wisconsin
 Ericka Wiltenmuth-Steffen      Flagstaff, Arizona
Tim Steffen      Flagstaff, Arizona
Morgan Johnson      Dallas, Texas
Dr. Robert Chetlin      Morgantown, West Virginia
Donna DeWick      London, England
 Lincoln Stultz      Oconomowoc, Wisconsin
Jayson Faires      Fairfax, Virginia
 Kathy Stultz      Oconomowoc, Wisconsin
 Pam Stultz      Maple Grove, Minnesota
Allissa Faires      Fairfax, Virginia
 Briana Faires      Fairfax, Virginia
Shirley Weatherford      Burnside, Kentucky
Rick Weatherford      Burnside, Kentucky
 Cody Weatherford      Burnside, Kentucky
Karen Devlin      Lake Mills, Wisconsin
 Bill Devlin      Lake Mills, Wisconsin
Megan Sebeck      New Windsor, New York
 Alyssa Flagge      Oak Creek, Wisconsin
Tashua Kutzhals      Fairfax, Virginia
 Briana Faires      Fairfax, Virginia
Gloria Frigerio      Milwaukee, Wisconsin
 Kevin Roskopf      Brookfield, Wisconsin
 Brett Sadler      Eagle, Wisconsin
Jim Sullivan      Wauwatosa, Wisconsin
 Tony Tanksley      Sacramento California
Charles Norris      Philadelphia, PA
 Michael Gene Falcone      Philadelphia, PA
Katie Ayala          Fredricksburg Va
 Richard Cook      Fredricksburg Va
 Ruth Cook     Fredricksburg Va
Will Cook     Fredricksburg Va
Tosha West     Midland TX
Charlie West    Midland TX
Cody West    Midland TX
Emmalee West   Midland TX
Dale Christine Lopez     Oak Lawn, Illinois
Shelia Ryan      Sandusky Ohio
Mary Louie      Westbrooke, Maine
Shannon Colson Sandusky Ohio
Ryan Sevier      Sandusky, Ohio
Patricia Jett      Fredericksburg, VA
Vince Fischer      Sandusky, Ohio
 Heather Fischer      Sandusky, Ohio
William Platt      Charleston, West Virginia
 Barbara Vonata      Richmond, Virginia

If you want to join us, check out our web site at
There is not cost to join. We just ask you wear our singlet in events, join us on Facebook and take a photo when you compete so we can let other team members know about it.

Chris Wodke
Founder & Manager Team CMT

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT

No comments:

Post a Comment