Follow by Email

Friday, January 13, 2012



Team CMT and the Hereditary Neuropathy Foundation join strides in the race for a cure!

Two organizations of like mind and motivation unite to create an even greater impact.  Team CMT, a force of 62 and counting, are athletes dedicated to raising awareness of Charcot-Marie-Tooth, the most common hereditary neuropathy that results in loss of peripheral nerve functioning and muscle atrophy.  And yes, many of team members themselves have CMT!   The Hereditary Neuropathy Foundation (HNF) is a non-profit organization dedicated to raising CMT awareness and funding research into treatments and a cure.  HNF was founded by Allison Moore, who was training for a marathon herself when an increase in her CMT symptoms sidelined her just before the New York marathon in 2001.  Since then she has dedicated her life to supporting those with the disease and finding a cure.

Together, Team CMT and HNF will indeed make a difference.

While Team CMT members can be found crossing finish lines throughout the world on any given weekend day, two major events are coming this spring.  Team CMT founder Chris Wodke runs the Boston Marathon for the first time on April 16th, and HNF/Team CMT members will ride as a select Charity Partner in Bike New York's Five Boro Bike Tour on May 6th.

To learn more about these amazing group of people overcoming intense physical challenge to help others, contact Chris Wodke (www.run4cmt@yahoo.com) or Allison Moore, allison@hnf-cure.org or call 1-800 (I'll fill in # don't have it on hand) 


Allison Moore 
CEO and Founder
Consumer Advisor Associate
The CMT National Resource Center
Hereditary Neuropathy Foundation (HNF)

1751
(212) 722-8396 office

(917) 648-6971 mobile
(917) 591-2758 fax


Chris Wodke
Manager Team CMT
Run4cmt@yahoo.com

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT

No comments:

Post a Comment