"Nobody can do everything, but everyone can do something."- unknown
Sunday was the last workout before the race. A quick 3 mile run just to loosen up the legs after two off days.
Friends Robert and Cheryl were lucky they had a 10 mile run on their schedule as part of their training for the Door County half marathon. They had a nice run along the Charles River.
We had lunch at Quincy Market and did a quick tour of Harvard. The biggest event on the schedule was the HNF event scheduled at the John Harvard Brew Pub. The event was organized by Team CMT member Duane Olsen. It was a chance to meet Gerry Lynch our sponsor from System 7 and his family.
Gerry and his wife adopted daughter Ollie from China last year and found she had CMT. Ollie is just an awesome young lady and it was great to meet her. It was also a chance to re-connect with HNF president Allison Moore and to meet teammate Louise Gerhardt.
It was an early night since I needed to be in bed by 8:30 so I could get a good nights sleep before the race.
We all have our part to play in this battle with CMT. I run, some of us raise funds, some generously donate or run a foundation. We all have the same goal, for others to recognize this disease and to end its progression in our lives.
Founder & Manager Team CMT
Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMT. We have almost 100 members in 17 states. If you wish to join us visit our web site.
CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS). It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.
Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.
Structural foot deformities such as high arches and hammer toes are common.
Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.
Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.
Running, triathlons, impaired athlete, paratriathlon, USAT, running and CMT