The Athlete Inside-Book Review

Released on April 28, 2020

"We have to be uncomfortable with where we are to make progress, otherwise we stand still and never go anywhere." - Scott Welle, author and motivational speaker

One day Sue Reynolds decided to make a change. Making a change and sticking with it, is one of the hardest things to do.  Resolutions made and not kept are a testiment to that.

Reynolds like many Americans had let her weight creep up due to the demands of work and family.  In 2010 she was morbidly obese at 335 lbs.

Then over three years she lost 200 lbs.  I struggle to lose 10 pounds. I cannot imagine the determination and discipline it took to lose this much weight. 

That alone would have made an interesting story, but along the way Sue decided to do a 5K race on a challenge from her son.  She wondered if you could even cover the distance and wondered if she would be the last one.  She worried she would inconvience race directors while they waited for her to finish.  She faced similar fears as she entered more races.

This book is her story as she slowly lost the weight and discovered the athlete hidden inside.
She also took on the challenge of triathlon.

I got an advance copy of this book from my fellow USA Triathlon Ambassador.  As a fellow triathlete her stories ring true. She and I have been at many of the same races and we share many of the same experiences.

 She talks about facing fears in the swim, fears she is being judged by others and fears about not measuring up.  Fears we all face. Sue triumps over them all!

You can follow along in her quest to be among the very best age group triathletes. She will take you along as she competes for the USA at a World Championship.  Her story shows that we should all dream big dreams.  Wanting to make a changes can be the start of a climb toward a big dream.

Sue is donating the profits from this book to the USA Triathlon Foundation. She is hoping the USAT will use the funds to help support the paratriathlon program. That is a cause that is very near and dear to my heart and I wish Sue every success.

**********************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

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The Dignity of a Diagnosis- Finding a Place

"You have to know what sparks the light in you so that you, in your own way can illumiate the world. " - Oprah Winfrey

Most people with CMT have never met someone outside of their immediate family that has CMT.  It is considered a rare disease with about 160,000 Americans affected.  That amounts to about 1 in 2500 people.

I remember two visually impaired athletes at race camp I atttended in Breckenridge this December. There were intense conversaton at lunch one day. One of them, Barbara turned to me and apologized.  She went onto to say she and the other athlete were "talking shop".  What she meant was they were talking about their shared experience of being visually impaired.

For many of us it's the same with CMT. When you meet someone you know they just get what it means to have CMT. You talk about what type you have, who in your family is affected, the symptoms you have and when they started.

So many people in the community want their friends and family to understand what it means to live with this condition.  You don't have to explain that to another person with CMT.  Even with a disease like CMT with a variety of symptoms, their is always shared experience.  That experience often includes the struggle to get a diagnosis.

Having sysmptions but no name for your condition can be isolating.  I found I often had to cancel plans with firneds due to fatigue.  Not being able to explain why was even more isolating.
Having a name to my condition gave me a place to belong. I now had a tribe that understands exactly what I am going through.

Team CMT helps provide a shared experience for those of us that are athletes and living with CMT. We can share the trials and joys of being active and racing. We understand that CMT steals a bit of our ability every day.

Not only do we have a shared experience but shared passion.  Being an athlete with CMT is even more rare. For a long time I thought I might be the only person with CMT that runs,bikes, swims or competes.  I was even told by the Charcot-Marie-Tooth Assoication that they only knew of  one other athlete with CMT.

We now have over 200 people that have joined Team CMT. Our purpose is to particpate in races to raise awaeness of CMT and funds for CMT research. More important, they are my tribe and my family.  We have dozens of atthletes with CMT from all over the world.

Some have finished Ironman triathlons and marathlons, others due a variety of exercises from kayaking to martial arts to stay strong and retain function. At a time when many people still did not talk about CMT, they stepped forward to claim their CMT and wear a Team CMT uniform. I am so grateful for their dedication to our cause and their courage.

Many of our members are friends and family members of those of us with CMT. Being on the team gives them a chance to help. I am so grateful for their love and support.

All of this is possible because of the diagnosis each of us have gotten. With it we have found our place. Each of us now has a chance to make a difference and to change our small part of the world.

Doctors should never minimize this condition or fail to tell a patient the name of their condition. To do so deprives them of their place in the world and their chance to contibute.

*****************************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

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The Dignity of a Diagnosis

Team CMT at the Five Boro Bike Ride New York City

"Everyone has a calling and your job is to figure out as soon as possible what that is, who you were born to be and begin to honor that in the best possible way for yourself. " - Oprah Winfrey

A few weeks ago I saw a posting on one of the CMT facebook sites about someone struggling to get a diagnosis.  I see these posts so often.  I once saw a statistic that it can take someon seven years on average to get a CMT diagnosis.

That mirrors my own story.  As long as I can remember I had all the symptoms. I have type 1A which shows sysmptoms early in life unlike some of the other 22 types of CMT. It is also the most common affect as many as 75 to 80% of CMT patients.

I tripped all the time. I was slow. I had terrible handwriting.  I was slow and not at all athletic.  I fought fatigue for years.  As a runner I would get injured often.  I had high arches, hammer toughs and extremely tight calve muscles.  None of the doctors or physical therapists ever mentioned CMT, but to be fair there was no family history.

It took a head injury from a bike accident to start me on the path to my diagnosis.  I was assigned a neurologist as follow-up care. Because of some things about the accident, he started probing further.
He told me I had some kind of neuromuscular condition. He started testing me from some scary things like ALS.  A nurse friend of mine asked if I really wanted to know, it the condition would not get bad until I was middle aged. I agreed with her and decided not to pursue it.

A few years later, my dad told me he was told by his doctor that he had a neuromuscular condition but not to worry what it was called. There was no treatment and no cure. His sister probably had the same condition.

I did not have to wait long to put a name to his condition and mine. My two yougest nieces were falling and breaking bones in their feet.  A doctor at Childrens Hospital in Philadelphia gave my niece Caitlin a genetic test. She was diagnosed with CMT and soon after so was I.

I wanted to know the name of the enemy I was fighting. I think every patient deserves the dignity of a diagnosis.  Because there are some common drugs that can accelerate CMT it is important to have a diagnosis.

I recently participated in a clinical trial for CMT. I could not have done that without a diagnosis.  New trials will provide new opportinties for those for a proper diagnosis.

For me personally I wish I had known sooner.  Many workplaces seem to want more than a 40 hour week out of their staff.   I tried to meet those requirements as best I could. But with also wanting to workout after work, it was tough.  I remember one really tough week when I was working a 3 pm to midnight shift as part of my supervisor job at a local utility. Three nights in a row, I ended up working until 3 am. One of those days I had to be back at 11 am for a meeting.  I was exhausted.  Usually that second shift is really very quiet after 9 pm. So I sent a not to my manager asking to go home at 9 pm if it was quiet.  The ohter male managers did it all the time. They didn't tell the boss as he had asked, they just went.

He pulled me into a conference room and told me basically that the hours were what the job demanded. I pushed back out of exhaustioni and frustration.  It seems silly to sit there when nothing was going on and I was so tired.  He did not appreciate my fighting the hours because he put me on an performance improvement plan.  If I had known my fatigue was from CMT, I could hopefully have shared that with him and gotten a different result.

Being in the working world with CMT can present unique challenges. I moved on to a manager job within the same utility.  Without knowing it, I interrupted what I suspect was a Director on a phone conference call.  I was in the process at the time of being fitted for hearing aids.  My manager asked me to allow the much younger assistant to the Director to monitor my speech.  You know, just to keep me from interrupting.  I asked for a peer to do that instead. Another women my own age. She said she never saw me interrupt anyone.  What is funny is it was common for the woman staff to be interrupted by men.  There were only 94 women in the entire division, mostly administrative staff.

I shared with my manager,that I had hearing loss and was aboiut to get hearing aids. I was put on a performance improvement plan.  The earler plan from the other manager was cited. So two strikes from CMT.  My hearing doctor said it was to be expected that I might interrupt on a conference call. Most people with hearing loss read lips. That gets missed on a phone call.

As an employee with an impairment I was legally entitled to ask for resonable accomodations. I did disclose that I had CMT.  Without a diagnosis I feel like my rights would have been limited.
I ended up leaving the company a short time later in a buy out when three plants were closed.  If  I had not had my diagnosis, I think I would have been forced out with no buy-out package.

CMT presents breathing difficulties for many. That puts us more at risk during this current pandemic. It is vital to know that we have CMT and the type so doctors can take the proper precautions to protect our breathing.

I hope the work I have done and the work of my Team CMT members has helped to raise awareness.
My goal has been to put a names and faces to CMT.  We can't find a cure for a disease no one has ever heard of.  We can't raise money for research and programs without wider public recognition.
With my diagnosis I found my life purpose and my mission. I became the person I was meant to be.
 I ddon't do media, write books and blogs to promote myself. I live a private life before my diagmosis
My activities are in service to the CMT community both diagnosed and those searching for an answer to their invisible enemy.

My hope has been when someone reads my blog or book, or sees one of our Team CMT members racing that they will learn a bit about CMT.  They may recognize like I did the symptoms that will lead to the disnity of their own diagnosis.

***************************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

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Slow Cooker Sunday- Sloppy Joes

This recipe today comes from my bother Tim.  The two of us are still on quaretine after his arrival from the Philipines. He is enjoying doing some cooking while he is staying with me. Today's recipe is his version of slow cooker sloppey joes.

Tim's Sloppy Joes

1 lb ground beef
1 small yellow onion chopped
3/4 cup Sweet Baby Ray's barbeque sauce
1 tablespoons worcestershire sauce
1 tablespoon apple cider vinegar
1 tablespoon water
salt and pepper to taste
6 hamburger buns
Cheese
pickles
onions

Brown the ground beef in a skillet.  Add the onion and cook until the onion is soft.  Add the meat and onion mixture to a crockpot. Add the barbeque sauce, wrcestershire sauce, vinegar and water.
Cook on high for 4 to 6 hours. Add more water if it gets to thick or a bit of barbeque sauce if it gets too dry.  Salt and pepper to taste
erve on buns with cheese, pickles and onions. 
Serves 6

*******************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

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Skillet Sunday-Lemon Cream Veal

Since I am working at home I no longer have to commute an hour every day.  I've used some of that extra time to work on some new recipes.  I got the veal I used in this recipe a few months ago.  It has been waiting in my freeze to find the right recipe.  If you have objections to eating veal, chicken or pork would work eqaually well in this recipe.

Lemon Cream Veal
1/2 cup all-purpose flour
1/2 teaspoon salt
1/2 teaspoon pepper
1 lb veal stew meat
1/4 cup butter
1 cup chicken broth
2/3 cup Chardonnay wine
1 cup half and half
3 tablespoon lemon juice
8 oumces sliced portobella mushrooms
Grated rind of one lemon
6 ounces tagliatella pasta
2 tablespoons olive oil


Place the flour, salt and onion in a shallow dish.. Shake off the excess flour.
Heat a cast iron skillet over medium heat.  Add half of the butter. Add the veal and cook until brown.
Add the rest of the butter and then the mushrooms.  Continue to stir and cook. Add a bit more butter if the pan gets dry.  Cook until the mushrooms release their juices.

Add the broth, lemon juice and wine. Turn down the heat to a simmer.  Cook until the sauce is reduced and thick, about 45 minutes.

While the veal is cooking, Bring a large pot of water to a boil.  Add a dash of olive oil.  Add the pasta and cook according to package directions.  Drain when done. Toss with olive oil and lemon rind.
Place in a covered dish to keep warm.

Add the half and half to the veal mixture. Salt and pepper to taste. To serve place some of the pasta in a dish and top with the veal mixture.  Sprinkle with grated parmesean cheese.

Serves 4

*********************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing, CMT disease, CMT and exercise, exercise and CMT, CMT, athlete and CMT.Team CMT, CMT athlete, athlete and CMT, bike4CMT, walk4CMT,  CMTA, HNF, Tri4CMT, Walk4CMT, MDA, #kneedeepinwork

Superfood Saturday-Hot Cross Buns

Hot Cross Memories

I think part of the experience of foods, especially foods around any holiday are centered around memories.

One of the reasons Ilike hot cross buns is I remember my mom making them for Easter. 
She loved Easter. It was her favorite holiday.  I remembr her making hot cross buns and how much I liked them.  She made almost everything from scratch and was an outstanding cook.

She always tried to make something special for any holiday. One Easter I remember she made raised yeast doughnuts.  She made them on Saturday afternoon and told us they were for Easter breakfast and no one was allowed to have one. With seven kids that is asking a lot.

She put them on a plate in our walk-in pantry and closed the door.  So she thought here work was done.  She had made about 3 dozen raised doughnuts. They were glazed and perfect. Think Krispy Kreme but maybe not so sweet.  True works of art, just waiting for us on Easter morning. Or so we thought. It had taken hours of mixing, frying and glazing.

My family always had several dogs.  My dad was a hunter and he always had a labador retriever. There job is to bring back birds to their master when they are shot down.  No water is too cold for them to swim through to retrieve a bird for their master. They are bred to retrieve.

So later in the evening of the doughnut making the whole family was gathered in the living room to watch TV. Suddenly our black lab Missy appeared in the living room proudly brining my dad one of the raised doughnuts from the pantry.  A quick investigation and we discovered she had broken into the pantry and eaten all but one of our precious raised doughnuts and brought pretty much the last one for her master.  She didn't get a "good doogie" for that.

My mom was in tears after all her work was devoured by the dog.  She actually went into the kitchen and whipped up some plain old doughnuts because there was no time to make more raised doughnuts.
That story is a family legend and we still laugh about it.  My brothers wanted to blame my little Sheltie mix dog, but  I will point out which dog was carrying evidence of the crime.

So you can mix up a batch of something special for your holiday. My brother will be with me. He had been trapped in the Philipines, but has managed to get a flight out. I am very grateful to everyone that has made his being safely at home possible.

I doubled the recipe and froze half for later.  I also made a couple of tweeks to the recipe and you should feel free to adjust it as well.

Hot Cross Buns
1 cup half and half
1 envelop instant yeast
1/2 cup sugar
2 large eggs
8 tablespoons butter
4 cups bread flour
2 teaspoons, cinnamon, alspice and nutmeg
1 teaspoon ground cloves
1 orange zested
2/3 cup raisians
1 cup confectioners sugar
3 tablespoons organge juice
1/2 teaspoon vanilla

Put the half and half, sugar and butter into a saucepan.  Heat until the butter is melted.  Add the raisians. Let the mixture cool until between 110F to 115F. 

While the mixture is cooling, add the yeast, spices, organge zest and 1 cup of flour to a large mixing bowl. If you have a mixer with a dough hook, use it.

Add the cream and butter mixture to the flour and start to mix. Add the eggs, one at a time.  Start to slowly add the rest of the flour. Continue to mix until all the flour is added. The dough may be a bit sticky.  Mix for 5 minutes if you have a bowl with a dough hook. If not knead for 5 minutes, adding flour if needed.

Form into a large ball and place into a greased bowl. Top the dough with oil and cover.  Allow to rise until doubled or about 3 hours. 

Turn the dough onto a work surface and divide into 16 balls.  Place the balls into a buttered pan in rows of four.  Cover with plastic wrap and allow to rise until doubled in volume. Again about another 2 to 3 hours.

Pre-heat the oven to 350F.  Using scissors, cut a cross in the top of each roll about 1/2 inch deep  Bake for 45 minutes or until the tops are golden brown.

Take out of the oven and allow to cool. While the rolls are cooling, mix the sugar, juice and vanilla.
The consistency should be thick enough to drizzle or pipe onto the rolls. Adjust by adding more sugar if too watery or a bit of water if too thick.

Frost the cut out area to make a cross.
Makes 16 rolls.

*******************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

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Soup Sunday- Mexican Cream of Tomato Soup

Mexican Cream of Tomato Soup
I am ordering produce on-line to minimize my exposue to the Covid-19 virus. I am in higher risk group because of my CMT.

 I have some breathing issues from my CMT and that puts me in a higher risk group. Because of that I've been avoiding the grocery store.  I group orders and sometimes I don't always know what fresh produce I need. I have been eating lots of food rich in vitamin C to boost my immune system. That included fresh tomatoes.

The tomatoes were ripe. Before they spoiled I decided I needed a dish to use them. So I came up with this soup. The recipe is pretty basic. I decided to use Mexican spices. To change the taste, change up the spices.  Basil and oregano would be great for an Italian version or curry powder for more of an Indian flavor. Feel free to experiment.

6 cups vegatable broth
3 Roma tomatoes
3 tomatoes
1/2 pint grape tomatoes
1 parsnip
1/2 yellow onion chopped
2 cups half and half
2 tablespoons chili powder
2 tablespoons red pepper flakes.
2 avocados
Juice from one small lime
1 tablespoon chopped fresh cilantro
salt and pepper

Put the broth, tomatoes, parsnip and onion into a stock pot.  Bring to a boil and cook until the parsnip and onion are softened. This will take about 30 minutes.  Turn off the heat and let cool for 30 minutes.  Put the mixture into a blender and blend until smooth.

Return to stove on low heat.  Add the cream and the spices.  Heat until the mixture just starts to simmer, but do not boil. While the soup is heating, mash the avocados in a bowl with the lime and cilantro.  Add a handful of the leftover grape tomatoes.

To serve place the soup in a bowl and top with the avocado mixture.
Serves 8

*****************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing, CMT disease, CMT and exercise, exercise and CMT, CMT, athlete and CMT.Team CMT, CMT athlete, athlete and CMT, bike4CMT, walk4CMT,  CMTA, HNF, Tri4CMT, Walk4CMT, MDA, #kneedeepinwork

Superfood Saturday-Banana Bread Oatmeal

Banana Bread Oatmeal

I've posted overnight oatmeal recipes before. This is another one in that same vain. The oatmeal is cooked in a slow cooker. I've been craving oatmeal since the weather here has been cold and rainy.
I did this one during the day when I was working at home.

I developed this recipe becasue I had some really ripe banana. The taste reminds me of fresh baked banana bread.  I had some half and half to use up. It makes for a really rich tasting oatmeal.  Use milk if you want to make a lower fat version.


3 really ripe bananas
1 cup steel cut oatmeal
1 tablespoon butter
4 cups half and half
1/2 cup water
2 teaspoons vanilla extract
1 tablespoon sugar

chopped pecans
golden raisins

Grease a small slow cooker with coconut oil.  Add all of the ingredients except the pecans and raisins.  Set the slow cooker to low.  Let cook for about 3 hours. Mash the bananas to incorporate them into the oatmeal.  Continue to cook until the oatmeal is thick and smooth. It will take  6 to 7 hours.

To serve scoop one cup into a bowl. Add a bit of cream if it is too thick. Add pecans and raisins on top.

Serves 6

*********************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing, CMT disease, CMT and exercise, exercise and CMT, CMT, athlete and CMT.Team CMT, CMT athlete, athlete and CMT, bike4CMT, walk4CMT,  CMTA, HNF, Tri4CMT, Walk4CMT, MDA, #kneedeepinwork

Social Distance Made Easy

"Be thankful for what you have; you'll end up having more. If you concentrate on what you don't have, you will never have enough." -Oprah Winfrey

It is spring in Milwaukee. That means we can get just about any weather during the week. We've had gray skies and 40 degree temperatures most of past couple of weeks. It was 33 F this morning when I started work.. But this afternoon it was sunny and due to be in the mid 50's. Time to break out the fat tire bike for an outdoor ride.

It was a perfect day for a bike ride. I'd been desparate to get outside and ride.  Riding on my indoor trainer has been causing knee problems so I had good motivation to get outside.

In the spring we have lots of pot holes, which is a product of the constant freezing and thawing we have in the winter. So in the Spring I ride a mountain bike or fat tire bike.  A pot hole can damage a bike rim or cause a flat tire. Not so with the fat tires. They ride right over any pot hole.

Plus my fat tire bike which I took out today, is just plain fun to ride. I resisted buying this bike.  I have a basement full of bikes.  I currently own a triathlon bike and a racing bike used just for races.  I have a road bike I use for club rides and traveling. I have an entry level road bike I beat up on the trainer and use for training rides around the neighborhood and I have a carbon frame mountain bike. That's six bikes. There is a joke among cylist's. How many bikes are enough? The answer; one more than you currently have.

I also inherited a bike from my brother when he moved overseas. That bike is going to get a new home soon with one of my co-workers.  I gave two bikes to my niece in the last few years and donated a road bike to a veteran for her first triathlon.  So things could be worse. I have to stop soon because I am running out of storage space.  I do ride all of them.

So I didn't need another bike in my basement. But with the Winter Triathlon seeming to find a permanent home in Minneapolis, it made sense to invest in my own fat tire bike instead of renting one. Plus there was a sale last year and I found one in my favorite color, green.

The fat tire bike is just plain fun to ride. I love riding any bike. I feel like a kid again. We used to ride our bikes all around the neighborhood. A bike meant freedom. Plus I feel like I am getting away with something.  That actually is true in some parts of the world. I was reading a review copy of the book "The Athlete Inside" by Sue Reynolds.  In it she describes a friend collecting bikes for and organizing a ride for women in Kenya. It is considered unladylike there to ride a bike.  Men are allowed to ride to travel, but women must walk.

I know when my mom was growing up, she never learned to ride a bike. Maybe her parents thought it was unladylike too.  What fun she missed. I think of her and what a privledge I have every time I ride.

During this COVID 19 outbreak, a bike really does mean freedom. It has been a challenge to run because there are so many walkers out. I keep having to cross the street to maintain the social distancing. 

Social distancing is made easy when on the bike.  I can ride down the road in my neighborhood and be a safe distance from all the walkers.  I am not sure if that will be the case on a bike path or trail. As the weather gets warmer I may test those limits.

In the mean time I am thankful for the warmer weather and the taste of freedom. Like the Spring it is just a taste of things to come.

***********************

Chris Wodke

Founder & Manager Team CMT

www.run4cmt.com

Chris is a triathlete and long distance runner. She is a three time participant of the Boston Marathon.  In 2012 she finished 2nd at Boston in the Mobility Impaired Division. She was on the course in 2013 when the bombs exploded.

She has appeared three times at the Paratriathlon National Triathlon Sprint Championship. She was the 2012 and 2014 National Champion Paratriathlon Open Division Champion.

In 2014 she was the PC Open Champion at the Duathlon National Championship and at the Aqua bike National Championship in 2016. She represented Team USA at the Aquathon ITU World Championship in Chicago in 2015i, Cozumel in 2016 and Denmark in 2018. In 2018 finishing 5^th in the 60 to 64 age group.

 In 2014 she represented the U.S. as a paratriathlete at the Pan-American Triathlon Championship in Dallas, Texas.  She has won state championships in cycling and triathlon as a senior Olympian. In 2017 she placed 2^nd in her age group at the Winter Triathlon National Championship, earning a spot on Team USA for the World Championship.

In 2020 she was named a National Ski Patrol Subaru Ambassador and a USA Triathlon Foundation Ambassador.

She travels around the country raising awareness of CMT.

She is the author of the book, “Running for My Life” that details her experience as a CMT affected athlete and the book “Soup Sundays, A Journey Toward Healthy Eating”.

http://www.henschelhausbooks.com/catalog/memoir-biography/215-running-for-my-life-winning-for-cmt-9781595982827.html

You may visit her author page at:
http://www.amazon.com/Christine-Wodke/e/B00IJ02HX6

Team CMT is a group of athletes and supporters working to raise awareness and to find a cure for CMTWe currently have 233 athletes in 41 states. We also have members in Australia, Canada, England, Finland, Vietnam, Iran, Scotland, France, Turkey, Poland, Norway, Mexico, Wales, Ireland and Sweden!. If you wish to join us visit our web site; www.run4cmt.com or www.hnf-cure.org

CMT or Charcot-Marie-Tooth is the most commonly inherited peripheral neuropathy. It affects over 155,000 Americans (as many as MS).  It is a disease of the nerves that control the muscles. It is slowly progressive, causing loss of normal function and or sensation in the lower legs/feet and arms/hands.

Symptoms include; muscle wasting in the lower legs and feet leading to foot drop, poor balance and gait problems Atrophy in the hands causes difficulty with manual dexterity.

Structural foot deformities such as high arches and hammer toes are common.

Poor tolerance for cool or cold temperatures and many people have chronically cold hands and feet.

Additional symptoms may include fatigue, sleep apnea, breathing difficulties and hearing loss.

Keywords: Running, Running and CMT, triathlon, triathlon and CMT, athlete and CMT, cycling and CMT, paratriathlon, challenged athlete, Team CMT, Running for My Life-Winning for CMT. Hereditary Neuropathy, Charcot-Marie-Tooth.

CMT and running, CMT and triathlon, CMT and athlete, Charcot-Marie-Tooth and running, Charcot-Marie-Tooth and triathlon, Team USA and Team CMT, Running for my life-Winning for CMT, CMT athlete, athlete and CMT, triathlete and CMT, Boston Marathon Bombing, CMT disease, CMT and exercise, exercise and CMT, CMT, athlete and CMT.Team CMT, CMT athlete, athlete and CMT, bike4CMT, walk4CMT,  CMTA, HNF, Tri4CMT, Walk4CMT, MDA, #kneedeepinwork